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Stephen Kuria at his home in Gilgil, Nakuru County. [Wilberforce Okwiri, Standard] .
Before 2018, life was normal for the family of Stephen Kuria, who managed a modest stationery business in Gilgil town. His granddaughter added to the family’s joy - but this was lost on account of a rare nerve condition.
The condition is so rare that less than 50 cases were recorded in the 10 years to 1988.
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