Greg Ngari: Rare disease has only delayed my dreams, it did not shatter them

Greg Ngari lives with a neuromuscular condition called Spinal Muscular Atrophy (SMA) and dreams of becoming a writer and editor. He is working on his first novel. [Rodgers Otiso, Standard]

A few months after Greg Ngari was born in 2003, his mother noticed that he had regressed in his milestones. For one, he suddenly had a challenge picking things up with his hands. He would also fall suddenly yet he had started learning to stand while supported by a table or chair.

By the time he was one year and five months old, Greg could no longer stand as he was too weak. His mother couldn't understand what was ailing her firstborn child.