- The 10-year-old suffers from a rare, incurable genetic disorder which makes him feel hungry all the time
- While most people take three meals in a day, Benjamin eats hourly
At age 10, Caden Benjamin, from Mpumalanga, South Africa already tips the scales at a whopping 90 kilogrammes. He suffers from a rare genetic disorder known as Prader-Willi syndrome, which makes him feel hungry all the time.
Caden was always a hungry child, but his mother, Zola, realised that there was something unusual about his appetite at age three, when he already weighed 40 kilogrammes.
She took the boy to several doctors, but no one could explain why he was so hungry all the time and gaining so much weight.
Finally, a doctor at Steve Biko Academic Hospital in Pretoria ran some tests and diagnosed Caden with Prader-Willi syndrome, an incurable condition that affects about 20,000 people worldwide.
While most of us eat just three meals a day, Caden’s hunger had him asking for food every hour. “Normally he would start off the day by eating four slices of cheese toast and then an hour later he would drink coke and eat leftover food from the night before,” his mother told local press.
“Then at lunch he’d eat two large pieces of chicken. He’d eat hourly for the rest of the day.”
The big problem was that Prader-Willi sufferers need less food than regular people, because their bodies have less muscle and tend to burn fewer calories. Doctors recently told Caden’s mother that he needed to go on a diet, if she wanted him to stay alive. But keeping him from eating has been a real struggle, due to his constant hunger.
“He’s really battling. I feel so terrible... but the doctors said that if I want to see my son alive, then he has to go on a diet,” Zola Benjamin said. “At one point, Caden was eating toilet paper. He’d eat rolls of it. He’d eat any paper he would find in the house. If there’s nothing for him to eat, he’ll scrape together the dirt he finds on the floor and eat that.”
To make matters worse, Caden had to undergo a tracheotomy a few years back, so he now breathes through a tube inserted in his windpipe. He spends most of his time on the couch or in bed, and gets bouts of depression because he can’t do things that children his age are supposed to do.
Caden’s mother is unable to work, because she has to watch over him constantly, both during the day and at night. She is struggling to keep up with medical bills, selling food she prepares at home, but it’s not enough to cover all the expenses.
Weighing 90kg at such a young age has already taken a heavy toll on Caden’s health.
Doctors recently told Zola that the excess fat has already severely deteriorated several major organs, and there is nothing they can do for him. She isn’t giving up the fight, though.
