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When Alice Mbere was around five years old, her parents noticed that she was not growing taller. Alice is the fifth child among nine siblings. Her parents had prior experience of what normal growth and development looked like.
"They started taking me to doctors, one after another. Each doctor had their own diagnosis. Some said bone problems. Another suggested surgery. And so on. But none of them provided a solution. At some point, my parents got tired: my father thought to himself, 'It's not hurting her. Let it be,'" she says.
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